Tag Archives: Kristie Tunick

Follow Up: Kristie Tunick Is Said To Have Scammed Us All!!!!

24 Dec

So everyone probably knows of Kristie Tunick,she contacted Kandee saying that she was in need of help because she had an unknown illness.

She said that she was in financial debt and all the medical insurance had given up on her. She said she only had 3 weeks left to live and she pled for Kandee’s help.

With a big and caring heart, Kandee decided to make a video to get people’s attention and help Kristie by passing it on so medical help can get to Kristie.

But then afterward’s, Kristie contacted Kandee again saying that Kandee was a liar about her illness and that she was going to sue Kandee.

Kristie and her fiance Brian, set the whole thing up so they can receive donations and media publicity. They refused all medical help but accepted donations.

After their scam was open to the public, they took down all the ‘carepages’ and even deactivated the facebook fan page.

Brain also has a criminal record for drug abuse. They left a nasty message to Kandee.

People like this are what makes the world a horrible place.

Summary: Now that you all are made very well aware this is a scam. Please show no more support to this story. I will not waist anymore time on this story period! There are people out there that can use real attention and help for this to be scam is so sad and disgusting to me. Really makes me sick to my stomach.

Now it makes sense why 20/20 has not did a follow up story like they said they would. I am sure they found this to be scam after their first television interview with 20/20.

Here is the link to the 20/20 story themselves for those that are curious where this actually started please go to the 20/20 website.  They reached out to a beauty guru named Kandee Johnson.  She is a make up artist who has a huge make up fan base on Youtube.  Kristie and her husband used Kandee Johnson to get ton of people to help her and send her money and actually said no to health care and just wanted the money.

The photos do show a sick Kristie Tunick that is not a lie. However to say you only have three weeks to live and that’s sure not the case is a scam! To play into her illness shows she has way more then her disease sounds like mental illness to me!

I am sorry to my “Heaven On Earth” readers!!!!!

Here is the link: 20/20- Kristie Tunick

Kristie Tunick: Follow up!What Do We Do When Our Health Care System Fails Us?!

6 Nov

What do you do when the medical system fails you, your only 32, a fashion genius, intelligent, beautiful & dying because some of the best doctors  do not know what is wrong with you?

Kristie Tunick experiences life with a body that can not touch hard surfaces or it paralyzes. Her story aired on 20/20 in August 2009 but producers have not followed up on her story. The segment left off with images of her dream wedding but instead she is lying in her bed fighting and waiting for a doctor that can save her life.

I have posted a blog post yesterday directly with the 20/20 article that they did on her life. Talking about her disease. However, we need more of you to make a difference.

Contact as many people, news channels, radio stations, blogs, websites,  news papers, anyway that you feel that can get someone to notice this story!

We all need to stand united. What do you do when your health care system fails you? Who do we turn to for help!!!?

We all have a voice and the power to make things happen as a community. Let’s take a stand. There are many other’s that are out there dying because when you have no money or run out of money. You then are denied service.

Then you lose hope! You feel that your cause becomes a cause that has no voice!

The only thing left is to die. This has to stop. We need to take a stand for people who really need the help.

Please add Kristie Tunick to your facebook. She and her fiance do respond back to each and every person. She is really wanting the chance at life. Losing hope! Let’s give this young woman her life back and hope for a better outcome!

Here is my personal video of her story. As well as Kandee Johnson her favorite make up artist who first did the first youtube video informing many on her condition. Also to you can add Kandee Johnson on her youtube channel as well as facebook. Which many of us already have.

Read about SPS here: Stiff Person Syndrome Wikipedia


Type in my search the upper corner Kristie Tunick to see the write up on her story that 20/20 did on her.

Thank you so much for your support and making a difference!

Kristie Tunick  : Facebook link


Kristie’s Care Pages Link

KristieTunick: Urgent! Help! Only 3 weeks to LIVE!

5 Nov

Kristie Tunick, 32, was determined to go to her future brother-in-law’s 2007 wedding, despite being ill for several years from stomach problems and an autoimmune condition that leaves her weak. 

In the end, Tunick went and had a terrific time. But she paid for it later when her body became achy and stiff.

“We were getting ready to leave, but I felt so ill,” Tunick recalled. “It was one of the first times I felt really stiff. I thought it was due to the flu, that I was achy and so it was hard for me to move.”

But it wasn’t a simple case of flu. Soon after Tunick and her fiancé, Brian Mendenhall, returned to their home in southern Nevada, Tunick found she could not stand up and was having trouble breathing. Her doctor sent her to the emergency room.

“Once we got to the hospital, my body had locked up,” said Tunick, who had also gone into respiratory failure. “I was unable to move any limb of my body, exactly like a paraplegic. But it’s extremely painful. It feels like I’m laying on cement and somebody is crushing me down.”

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Tunick was experiencing the first of many episodes in which her muscles seized up painfully, a rare neurological condition known as Stiff Person Syndrome (SPS). Though the cause is unknown, SPS has features of an autoimmune disease in which the body’s immune system attacks itself, setting off, in this case, muscle spasms. For some people with the condition, unexpected stimuli — such as loud noises and emotional distress — can trigger muscle spasms and falls. Because these stimuli are so prevalent in the outside environment, many SPS sufferers are afraid to leave their homes.

Loud noises do not trigger Tunick’s episodes. Rather, Tunick’s painful muscle spasms paralyze her anytime her body comes in contact with a hard surface, such as a chair or a hard bed. And the spasms can be severe.

“When you feel the muscles they’re really hard, like rocks,” said Dr. William Weiner, chairman of Neurology at the University of Maryland School of Medicine and a member of the American Academy of Neurology. “It’s a really abnormal feeling.”

Diagnosing Stiff Person Syndrome

Individually, the symptoms of SPS are not diagnostic, meaning they are often too general for doctors to be able to understand much of anything about what condition a patient might have.

And because the syndrome is so rare, it is often mistaken for a variety of musculoskeletal conditions, including Parkinson’s disease, multiple sclerosis, fibromyalgia or something of a psychosomatic nature.

“Sometimes people are mistaken for being neurotic or overly anxious,” Weiner said. “They complain of intermittent spasms, and doctors won’t recognize it.”

Weiner added that his clinic may only see one person with SPS every three or four years.

Challenges With Autoimmune Disease

Tunick struggled with autoimmune diseases for years prior to her first SPS episode. Gastroparesis, a disease that paralyzes the stomach muscles, forced her onto a liquid diet. She also suffers from Myasthenia Gravis, which makes her weak and leaves her with little control over her facial muscles.

She has undergone a number of surgeries in the quest to improve her health. She had her gallbladder removed in January 2006 to try and cure her gastroparesis but the operation made her condition worse and she began having long moments when she lost consciousness.

Following the disastrous episode after the wedding, Tunick was sent to UCLA, where neurologists gave her a possible diagnosis of SPS. But they were not able to do a complete work-up of her condition because she was five weeks pregnant.

“That shocked all of us,” Tunick said. “I wasn’t supposed to be able to get pregnant [because of medications], and I was in pre-menopause.”

Tunick had an abortion. Then, for about five months between January and May 2008, she remained locked up, stiff and unable to move any of her limbs.

“I was a paraplegic, basically,” Tunick said. “[Afterwards] I went to rehab and had to relearn how to do everything, like a baby.”

Confusing Symptoms

Her physical inabilities have taken a frightening emotional toll on the couple.

“It scares Brian to think he’s going to walk into the house and find me dead,” Tunick said.

In addition, insurance companies have made diagnosing and attempting to treat Tunick’s various conditions a frustrating daily problem. In the past, her insurance providers have refused to fly her by helicopter to specialized treatment centers, discharged her from intensive care units while her muscles were still tensed, and prevented her from undergoing smaller procedures such as multiple endoscopies.

Paying For Treatment Proves Difficult

Tunick and Mendenhall are struggling now to raise enough money — they estimate that they need approximately $200,000 — to go to the Mayo Clinic in Rochester, Minn., one of the premier centers for evaluating SPS. The couple is already burdened with costly hospital bills from the last few years of treatment.

Weiner said treating SPS is heavily dependent on the person, and there are no guaranteed therapies. The most common treatments include muscle relaxants such as diazepam or anti-epileptic drugs to control spasms, but some patients don’t like them because they cause drowsiness.

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“The whole thing can be quite debilitating,” Weiner said. But he pointed out that there are some promising therapies for autoimmune diseases such as SPS that work by flushing the immune system with a new population of antibodies, in the hope that they will be less aggressive toward bodily tissues than their predecessors.

Meanwhile, those like Tunick who live with the condition wait for a medical solution.

“I haven’t spent that much time doing anything in public due to my illness. Prior to this I was the most active person you’ve met,” said Tunick, who maintained a full time college and work schedule in addition to participating in a sorority, and later cared for her chronically ill mother for about three years.

“I never know what my body is going to do,” she said. “I couldn’t be maid of honor at my best friend’s wedding. I couldn’t even attend the wedding.”

MY SUMMARY: I am a very compassionate human being. I believe in paying it forward. Please if you can post this to your blog or any social network that you have. She only has three weeks to live. No human being should ever have to go through this and live with this much pain! She truly wants to live.

We all can make a difference by spreading this to as many people and websites as possible and hopefully that miracle that will save her life will happen before three weeks.

We are suppose to be a united nation…. for once let’s stand united and make sure a young life isn’t lost from us not doing anything. Pay it forward. Make a difference. Thank you so much and please repost this youtube video and article thank you for reading this! Let’s stand united!!!!!! Thank you Kandee Johnson for sharing this on your youtube allowing other’s to also make a difference!


Theresa~ aka Vfare36

Article found here

Her carepage profile

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